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Care services for people with learning disabilities and challenging behaviour

The Government has not met its central goal of moving people with learning disabilities and challenging behaviour out of hospital by 1 June 2014, because it underestimated the complexity and level of challenge in meeting the commitments in its action plan.

Following the exposure in May 2011 of abuse of patients at the Winterbourne View Hospital, the Department of Health set out its action plan in the ‘Winterbourne View Concordat’.  At the time the Concordat was published in December 2012, the Government had not determined the scale of the challenge involved in increasing the capacity of community placements. According to the NAO, the absence of reliable data on the number of people in mental health hospitals complicated the task of discharging inpatients. At September 2014, there were 2,600 inpatients with learning disabilities in mental health hospitals.

The NAO estimates that, in 2012-13, the NHS spent £557 million on services for inpatients with learning disabilities and challenging behaviour. In addition, local authorities with adult social services responsibilities spent £5.3 billion, in 2013-14, on community services for adults with learning disabilities.

When the Concordat was published, the Government did not have information on the ability of local commissioners to put in place the bespoke community placements and personalised care plans required to manage patients’ risks effectively, and prevent patient readmission. Nor had the Government analysed the reasons for new patient referrals to mental health hospitals (including the impact on the total inpatient mental health population) or quantified the resources needed to accelerate patients’ readiness for discharge, to meet the 1 June 2014 target date.

In line with the Health and Social Care Act 2012, the Government left it to NHS England and local health and social care commissioners to determine how to meet the Concordat commitments. Therefore, the Government could not compel those responsible for delivery to implement the necessary changes, such as through pooling budgets or ring-fencing funding. Funding does not currently follow the patient with learning disabilities when they are discharged from hospital. There is no financial incentive for local commissioners to bring such patients home. They have to bear the additional costs of expanding local community services to meet the patients’ needs, following discharge from hospital, when NHS England had centrally funded patients’ care in mental health hospitals.

NHS England has regularly reviewed the status of the 48 patients who had been resident at Winterbourne View Hospital at the time of its closure in June 2011. The latest review, between January and June 2014, showed that 10 people were still in hospital; 20 were living in residential care; 5 were living in supported housing; 12 had their own tenancy; and one had died.

NHS England now has an ambition to discharge 50 per cent of the population of 2,600 in-patients with learning disabilities and challenging behaviour to more appropriate care settings by 31 March 2015. Some patients have already been discharged, but there is so far no timetable or ambition to reduce the inflow of inpatients with learning disabilities into mental health hospitals, or to close mental health hospitals.

“The process of moving people with learning disabilities and challenging behaviour out of hospital, where appropriate, is complex and defies short-term solutions. Unless all parts of the health and social care systems work effectively together, it is unlikely to happen. NHS England has made a disappointingly slow start to this task. Although it has now increased its activity, there are formidable care, organizational and service hurdles to overcome in establishing a new model of care in more appropriate settings.”

Amyas Morse, head of the National Audit Office, 4 February 2015

Notes for Editors

2,600

Inpatients with learning disabilities in mental health hospitals at September 2014

£557m

NHS spending on inpatients with learning disabilities living in mental health hospitals, 2012-13

13

Winterbourne View commitments met, out of the 20 key commitments government set itself

£5.3 billion

Spent by local authorities on community services for adults with learning disabilities, in 2013-14

1 June 2014

Date in the Winterbourne View Concordat when all people, for whom it was appropriate, should have transferred from mental health hospitals into the community

920

People in mental health hospitals who still had no date for planned transfer to the community, at September 2014 (for 691 of these, a clinician had decided that they were not ready)

150

Unannounced Care Quality Commission inspections after the Winterbourne View scandal: 71 NHS trusts, 47 private services and 32 care homes

83%

Of the 2,600 people in mental health hospitals were sectioned under the Mental Health Act, as of September 2014

6 years and 9 months

Average length of continuous inpatient stay (including transfers between hospitals) in the 4 hospitals we visited

17 years and 4 months

Average length of stay, including admissions and readmissions, in the 4 hospitals we visited

50+ kilometre

Journey from hospital to home for 36.5% of inpatients in mental health hospitals

1. In December 2012, the Department published the DH Winterbourne View Review – Concordat: Programme of Action. This included around 100 commitments, with the Government stating that, by 1 June 2014, if any adult with a learning disability and challenging behaviour would be better off supported in the community, then he or she should be moved out of hospital.

2. Press notices and reports are available from the date of publication on the NAO website, which is at www.nao.org.uk. Hard copies can be obtained by using the relevant links on our website.

3. The National Audit Office scrutinises public spending for Parliament and is independent of government. The Comptroller and Auditor General (C&AG), Amyas Morse, is an Officer of the House of Commons and leads the NAO, which employs some 820 employees. The C&AG certifies the accounts of all government departments and many other public sector bodies. He has statutory authority to examine and report to Parliament on whether departments and the bodies they fund have used their resources efficiently, effectively, and with economy. Our studies evaluate the value for money of public spending, nationally and locally. Our recommendations and reports on good practice help government improve public services, and our work led to audited savings of £1.1 billion in 2013.

Contact

NAO Press Office
+44 (0)20 7798 7400 or email pressoffice@nao.gsi.gov.uk

PN: 11/15